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1,600 Babies diagnosed

every year in the USA.

The cause of CDH is unknown even after decades of research

Same occurrence rate as Spina Bifida and Cystic Fibrosis yet national funding is a fraction of those

50% Overall

Survival Rate

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(Left) The diaphragm is a sheet of flat muscle that separates the heart and lungs from the abdominal cavity. (Right) In CDH, a hole in the diaphragm allows abdominal organs to move into the chest and restrict lung development. © CHOP/CFDT


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Center of Disease Control

Data and information from the CDC highlighting basic CDH information


Children's Hospital of Philadelphia

Information on  CHOP, their studies, survival rates and other factors that make them a leading hospital fighting for better treatment and the cause.

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CDH International

The leading International CDH foundation. There CHERUBS program is a great support program for CDH families.

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