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A Message of Compassion and Strength for Families Navigating CDH & Loss CDH and loss are complicated enough and when you have an added layer of holding it together and explaining CDH and its impacts to a sibling it further complicates the situation. Siblings of any age will want to understand, just as you might, but they may not be able to understand the depth of it. A CDH diagnosis is an excruciatingly complex and life altering diagnosis. There are so many factors affecting

A Message of Compassion and Strength for Families Navigating Grief A loss Mom has a different perspective on the way of the world. Each day brings new struggles and joys that you have to adapt to and learn to live with. Grief isn't just the first year or holidays. It is something that lingers inside of you. It becomes a part of you, that you learn to carry. People learn the new you. They may want the "old you" before your loss, but that is not going to happen. The loss is so

A Message of Compassion and Strength for Families Navigating Grief Life after loss of your baby feels like you are a shell of yourself watching life move by without understanding how to move with it. You may go through every stage of grief rapidly and repetitively with no concrete "resolution," honestly, because there isn't one. On the other hand, you may hold on to one stage of grief for a long period, kind of as if you are frozen in the form, you instinctively held onto the

This blog is to provide some guidance on how to carry grief during the holiday season while your heart is under construction.

This blog is to offer insight into what prenatal care typically looks like after a CDH diagnosis and outlines the decisions you may face before delivery.

Now that you received your congenital diaphragmatic hernia (CDH) diagnosis, you are wondering how you can gain a better grasp on CDH and how to make the best decisions for your unborn child. This is no small feat on its own and requires a team of highly skilled medical professionals to help guide you through this journey. But what are the questions that you should be asking this team? The goal of this blog is to provide insight into what questions you should ask your prospec

A Message of Compassion and Strength for Families Facing CDH Receiving a congenital diaphragmatic hernia (CDH) diagnosis is life changing. Many parents hear these words during what should have been a joyful anatomy scan, only to have their world turned upside down. It can feel like stepping into the twilight zone — a tug of war between rational thought and overwhelming emotions.  This journey is not the one you imagined, and it may feel unbearable at times. But please know th

What Is a Congenital Diaphragmatic Hernia?  Congenital diaphragmatic hernias (CDH) are rare but serious birth defects that occur when the...